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Latest episodes

Hear from people who influence the rare disease community.

Episodes
Finding Purpose in All of It
Finding Purpose in All of It
We all handle life (and our diagnoses) differently
We all handle life (and our diagnoses) differently
They won’t be children forever: the transition from pediatric to adult care
They won’t be children forever: the transition from pediatric to adult care
Creating Connections in a Fragmented Landscape
Creating Connections in a Fragmented Landscape
Revisiting Moments
Revisiting Moments
Other end of the tunnel: True reality of hope is effort
Other end of the tunnel: True reality of hope is effort