Hear voices of the rare disease community!
No two rare disease journeys are the same, but they are very similar. Raising Rare focuses on the stories of parents raising rare children as they navigate their way along a largely uncharted path:
the search for treatment, help, and strength raising a rare child.
Co-host Brittany’s daughter has a unique variant of rare genetic disorder.
The impact of this variant continues to unfold and .
The family continues to adapt to the latest twists and turns.
The podcast features stories of many rare disease families, and occasionally clinicians, researchers, and Industry leaders in the rare disease community.
Latest Episodes
Educating the rare disease community
Each episode adds to a diverse spectrum of rare stories focused on finding treatments for rare conditions. These real stories are shared by people who shape this community - Rare disease families, patients, researchers, clinicians and Industry leaders and more.