What Have We Learned in the Last 6 Months?

We discuss the joys, challenges, and surprises of raising a child with a rare disease on every episode of Raising Rare.

In this conversation, we reflect on what each of us has learned through these discussions, through life “outside the podcast,” and through other people we have met along the way. 

Without any set plan, we wander through resilience, learning not to react to some changes in our kids, and the need to inject some art and creativity into the logical and scientific world of rare diseases.  Each of these topics are the result and the formative process of our individual growth.  And by sharing our lived experiences we fuel that growth.

The three of us really enjoy and appreciate having these open, vulnerable discussions; we learn so much about ourselves and each other.  We hope you do too.

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