They won’t be children forever: the transition from pediatric to adult care

As Raising Rare continues to grow and evolve we are going to start bring in professionals that have beneficial stories for Rare Parents.  These are individuals who have dedicated their lives to helping families in one aspect or another as they care for their children.  Their viewpoints, stories, and perspectives are uniquely beneficial to parents that are involved in the rare community.

On  this episode of Raising Rare we talk with Neil Ead, a 40 year veteran of the nursing field who has focused his career on pediatrics and more specifically chronic care.  Neil discuses with our cohosts the importance of preparing in advance for the transition from pediatrics to adult care.  This process includes finding replacements for most to all members of the care team and how hard this can be for the team members and the family.  

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