The Disorder Dads (Part 3): Millions of Families… One Rare Disease Story
We are starting a unique 3-part series about a couple of rare disease Dads finding themselves doing things they never expected. We are talking to Bo Bigelow whose daughter Tess has Hao-Fountain Syndrome (USP7).
The Disorder Dads (Part 2): Daniel DeFabio’s Surprisingly Grateful Response
We are starting a unique 3-part series about a couple of rare disease Dads finding themselves doing things they never expected. We are talking to Bo Bigelow whose daughter Tess has Hao-Fountain Syndrome (USP7).
The Disorder Dads (Part 1): Bo Bigelow's Story
We are starting a unique 3-part series about a couple of rare disease Dads finding themselves doing things they never expected. We are talking to Bo Bigelow whose daughter Tess has Hao-Fountain Syndrome (USP7).
Living Proof: Terri And Billy Ellsworth - Part 2
It was a chance of a lifetime, but it was scary for 10-year-old. Billy tells us about his memories and perspective being in a clinical trial for Duchenne Muscular Dystrophy.
Brave Pioneers in DMD Terri And Billy Ellsworth - Part 1
They were on the front lines of research that has now brought hope to some boys with Duchenne Muscular Dystrophy. Exon skipping clinical trial.
Nicole Horvath: A Life of Outliving Cystic Fibrosis Expectations
Cystic Fibrosis was a terminal disease when Nicole Horvath was born. She shouldn't be here. But she is, due to the research efforts of the Cystic Fibrosis Foundation.