There’s always one more step
Since last talking with Dillon earlier this year, he has faced some difficulties related to his mental health, access to medication, and not being granted access to a new clinical trial.
On October 8th, Dillon is participating in RideAtaxia to help raise money and awareness for Friedreich’s Ataxia.
How high is the real cost?
Life with a rare disease changes everything for parents.
What is the cost of stress? What is the cost of scheduling everything? What is the cost of explaining your situation...again? What is the cost of one more thing?…
Give Yourself More Grace
Dillon Loomis-Head is a dear friend to Salem Oaks, a mental health advocate, a clinical trial participant, and a Friedreichs Ataxia Research Alliance Ambassador.
Who cares for the caregivers?
Cristol Barrett O’Loughlin, founder of ANGEL AID CARES, was a caregiver to 3 of her brothers early in her life; now she works to care for caregivers.