Caring for a Rare Child, Managing Life, Science, Finding Care Options, Advocacy, Celebrations Ramya Ramaswamy Caring for a Rare Child, Managing Life, Science, Finding Care Options, Advocacy, Celebrations Ramya Ramaswamy

On the Ground at Global Genes 2022

In this different episode, Sanath and Brittany ask Kevin about his experience at the 2022 Global Genes Patient Advocacy Summit. Kevin recorded the episode on location from the Town & Country resort in San Diego.

The experience of being back together was powerful. The tone of the conference was much more patient- and caregiver-centered than before. Sessions about mental health, relationships, and managing life with Rare Disease.

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