Caring for a Rare Child, Managing Life, Science, Finding Care Options, Advocacy, Celebrations, Grief, Compassion Ramya Ramaswamy Caring for a Rare Child, Managing Life, Science, Finding Care Options, Advocacy, Celebrations, Grief, Compassion Ramya Ramaswamy

Coming Together For A Cure - Blake Benton Part 2

In Part 1, we heard about the bold and courageous approach that Ryan Benton's family took to treat his Duchenne Muscular Dystrophy.

The mission of CTFAC is to make stem cell therapy the standard of care for Duchenne Muscular Dystrophy a wide variety of rare and debilitating diseases.

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Caring for a Rare Child, Managing Life, Science, Finding Care Options, Advocacy, Celebrations, Grief, Compassion Ramya Ramaswamy Caring for a Rare Child, Managing Life, Science, Finding Care Options, Advocacy, Celebrations, Grief, Compassion Ramya Ramaswamy

A Bold and Courageous Approach - Coming Together For A Cure

Blake Benton’s earliest memories were his brother declining due to Duchenne Muscular Dystrophy.

About 10 years later, his parents and brother made a bold move. They went to Costa Rica to get an experimental stem cell therapy.

Ryan and Blake started a non-profit named after a benefit concert they held – Coming Together for a Cure (CTFAC). The goal of CTFAC is to advocate for more stem cell research in DMD and other diseases. There are many challenges, especially in the US.

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