We have a heartbeat, right?

Josh and Kristin Hoyle knew that life with their new daughter Chloe was going to be different and likely difficult long before she was born.  Even in this knowledge, they believed there was a purpose for what they were about to experience.  And they leaned into the challenge.

Chloe has Bohring-Opitz syndrome and requires 24/7 nursing care to attend to her respirator, trach, and airway.  When the visiting nurse services proved inconsistent, they made the decision to take on that round-the-clock care themselves.  That meant Josh would leave his job.

And throughout all this, they found purpose and strength through helping other families.  Their story is one of strong faith, amazingly positive attitude, and love. 

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Did you know that Raising Rare has a merch store? Visit https://www.etsy.com/shop/Apparel4Zebras.

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One Day You Will be on the Other Side

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We all handle life (and our diagnoses) differently