Learning His Language
“He is using everything he can to communicate. That it is one of his strongest skills at this point.”
Raising a child with a rare disease means that everything is just a little bit harder. There are no simple trips to the doctor. Any trip in the car requires lifting this growing boy into his seat, and he cannot even help.
In this episode Sanath paints a vivid picture of what this means for Ramya and him. He also reports that Raghav is developing communication skills. Given his condition, this means that his family needs to learn what he is trying to tell them. We hope you enjoy hearing about this very important aspect of their life.
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Music: Jacob Tompkins (losstudiosnc@gmail.com)
Graphic Design: Ramya Ramaswamy (ramya@curegpx4.org)