It's just not humanly possible

Parents cannot focus 100% on the child as well as make progress toward a treatment. It’s just not humanly possible. 

In this short episode, we talk to Sanath and Ramya about the importance of relationships. We talk about their relationship with each other, Raghav’s grandparents, and some close friends. When faced with the challenges a child with a rare disease brings, they have found that these relationships are essential to get them through. And we also explore how the common goal of finding a treatment for Raghav has impacted those relationships.  

Sound Design and Music: Jacob Tompkins

Graphic Design: Ramya Ramaswamy

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Difficult Decisions

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We Need Decisions that Lead to Therapies for GPX4